Data Reporting & Management News

CBMi Creates Shared Decision Making Portal

CBMi's Dr. Robert Grundmeier and lead Human Computer Interaction Specialist Dean Karavite collaborated with CHOP's Dr. Alexander Fiks on the creation of the Shared Decision Making Portal for Pediatric Chronic Illness. Drs. Fiks and Grundmeier’s portal is a modification of MyChart that greatly expands MyChart’s capabilities. While the pilot version of the portal is focused solely on asthma, Dr. Fiks and his team hope to eventually introduce versions geared toward other diseases, such as ADHD. Read more about Making Families Active Partners in Care.

The portal, known as the “Shared Decision Making Portal for Pediatric Chronic Illness,” works with Children’s Hospital’s new MyChart patient site, which is currently being rolled out to the entire CHOP network and was originally developed by Dr. Grundmeier. By providing access to portions of medical records remotely, MyChart allows families to request appointments, view test results, and access health summaries and growth charts. In effect, MyChart replaces the telephone, Karative said.

Drs. Fiks and Grundmeier’s portal is a modification of MyChart that greatly expands MyChart’s capabilities. While the pilot version of the portal is focused solely on asthma, Dr. Fiks and his team hope to eventually introduce versions geared toward other diseases, such as ADHD.

The portal contains a number of features that families can interact with. For example, the portal allows parents to fill out monthly symptom and care surveys, which can help free up time in the examination room. The system will send families regular reminders to fill out these care surveys, and through the portal doctors will be able to see detailed timelines of how their patients are progressing.

The portal also contains an extensive library of educational materials about asthma, including videos, materials geared toward children, and literature on symptom triggers such as cigarette smoke and dustmites. There is also a version of the portal for doctors that they can use to view detailed records, fill out assessments, and “assign” educational materials for patients to view.

“Research shows that patients adhere much better to the treatment options that they are comfortable with and that are the most practical for them,” Dr. Fiks said, pointing out that “choosing a treatment that doesn’t “fit” can lead to unsuccessful results.” Overall, projects like the new portal, that use the wealth of information available to doctors and patients, make families “active partners in care,” he noted.

Source: The Children's Hospital Research Institute 2012 Annual Report.