Application Development News

Longitudinal Pediatric Data Resource Featured in NBSTRN News

The Newborn Screening Translational Research Network (NBSTRN) has developed the Longitudinal Pediatric Data Resource (LPDR), a combined system of standardized data elements, electronic data capture, centralized data management, unified data representation, and case reporting within a FISMA-compliant architecture. The LPDR is available for researchers, clinicians, and public health teams to use for secure data collection, sharing, management, and analysis across newborn screening conditions while establishing a valuable resource for the community.

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